Jono Orphan

wdt_ID	Date	Notes	Support Worker
15	19/11/2024 12:47 PM	x	jeremyacott
16	02/12/2024 12:04 PM	family handover: (Si) Jono slept though out the night and got up at 7:30 am. Jono watched the match of Liverpool vs Man City game yesterday and was cheering them on. We left home at 10:40 am.	Sophia_Ramsay
17	02/12/2024 04:32 PM	Little Ilford: On the walk to the centre Jono referenced “newspaper”, “Christmas”, “coke a cola” and “Wave”. We arrived to the centre at 11:20 am. Jono took off his bag, coat and shoes and got into the tent. Jono was listing to a lot of music. Jono got out of the tent at 12:40 pm and stated making his lunch. After lunch (13:05 pm) Jono stated his first art section, painting on the large canvas with sand and flour and glue down his greeting for his Christmas card to granny. At 13:15 pm Jono finished art and sat down and watch videos and listen to music and some ripping. Jono started making his snack at 14:30 pm. After snack Jono started his learning at 15:00 pm Jono wrote “Happy Christmas” by himself. After learning (15:20 pm) Jono started his second art section, making Christmas card.	Sophia_Ramsay
18	05/12/2024 11:18 AM	(03/12/24) Home handover: (Si Orphan) Jono slept through the night. Jono referenced the car when we were sat at home. We left his house at 10:35 am. Little Ilford session: Jono was a bit hyper on the walk over to the session (making loud noises, “ha”, quick breaths). On the way to the session Jono referenced “Chinese food”, “Newspapers”, “Delivery”, “Birthday" and “Pharmacy”. We arrived to Little Ilford at 11:20 am. Jono took off his bag, coat and shoes and turned on his white noise machine. Jono watched videos on his phone. He made very loud hyper sounds whilst in the tent (coughing laughs, “Ha”) and got out of the tent two times to run to the kitchen and back. At 12:36 pm Jono got out of his tent to start making his lunch. After lunch Jono did his first art session, painting with sand and flour on a large canvas. At 13:37 pm Jono went back into his tent. Jono got out of the tent to go to the toilet. Jono ran between the tent and the kitchen a few times. At 14:30 pm Jono got out of his tent to make his snack. He asked for Newspapers to rip during snack, and messaged Sophia on Whatsapp. After snack Jono did learning: He wrote two Christmas card greetings, emailed them to Sophia, played the Christmas pattern game and asked to do two worksheets (Superdrug, B and Q). After learning Jono did his second art session. Jono decorated three Christmas stocking cards. He concentrated really well during his second art session. Jono finished his second art session at 15:30 pm. Jono sat and ripped up cardboard and Newspapers, he referenced WAVE Little Ilford and Pharmacy Paper Bags. Jono went back into his tent at 16:00 pm. At 16:30 pm Jono got out of his tent to brush his teeth and go to the toilet.	Josie_Tuttiett
19	13/12/2024 12:46 PM	09/12/24 Family handover: (Al and Si) Jono stayed one extra night at Liverpool as of the storm and went with his family to the doc to get his grandmother checked up. When there got back from Liverpool Jono went to wave and seemed stressed for about 10 min then was fine. We left home at 10:50 am to go to the centre. Little Ilford -Jonathan and Sophia: On the walk to the centre Jono referenced “newspaper”, “charity shop”, “pharmacy”, “coke cola”, “Christmas”, “birthday”. We arrived at the centre at 11:24 am. Jono took off his bag, coat and shoes and got into his tent. Jono was listing to a lot of music. Jono got out of the tent at 12:40 pm and stated making his lunch. After lunch (13:15 pm) Jono stated his first art section, painting on the large canvas with sand and flour. At 13:25 pm Jono finished art and sat down at his table to watch videos and listen to music and do some ripping. At about 14:15 I asked Jono if he wanted to make his snack and he said yes in a very hyper manner – laughing, closing his eyes tightly, gritting his teeth tightly and rocking. Jono quickly appeared to became calmer and made his snack quickly with no prompts. After eating Jono went on his phone for a bit of a break as he had had his snack early. After about 15 minutes Jono appeared keen to start learning – smiling and pointing enthusiastically at the laptop. During the online games Jono listened and responded well to instructions and while doing worksheets Jono appeared to concentrate well - immediately focusing and figuring out words independently. When Jono moved onto the 2nd art session he listened and responded well to instructions, appearing to enjoy doing the cutting and sticking and completing each card. We tried to tidy away the paper, card and glue that hadn’t been used but Jono insisted on throwing it all away. After which he ripped up and threw away 2 of the pieces of the Christmas cards and appeared to be going for the rest of the Christmas cards so I directed Jono to go to his tent. I then moved the Christmas cards to the lockable cupboard to make sure he didn’t rip up any more. Jono needed time in the tent and we had to set an alarm twice to be able to transition to getting ready to leave.	Michael_Solomon-Egwu
20	12/12/2024 04:28 PM	Home: (Si) Jono went to the Christmas Party and enjoyed seeing everybody (11/12/24). He went to bed at 11pm, and was hyper. He had received presents from the staff team. Otherwise, he slept through the night. Little Ilford: We arrived to Little Ilford at 11:30. On the walk over Jono referenced "WAVE church", "Kebab", "Pharmacy" and "Magazines". Jono took off his bag, coat and shoes and went into the tent. The white noise machine was turned on and he put on videos on his phone. Jono was given three newspapers to rip up in his tent. At 12:36 Jono got out of his tent and made his lunch. Jono was hyper during lunch prep, and went back into the tent halfway through and lay down. For lunch Jono had beef mince hotpot and one glass of water. Whilst eating Jono referenced “superdrugs” and “magazines”. Whilst washing up a glass fell on the floor. Jono was immediately escorted out of the kitchen and the glass was picked up, and the floor was hoovered. Josie checked the bottom of Jono’s feet for glass but there was none. After lunch Jono did his first art session, painting with sand and flour on a large canvas. At 14:10 Jono went into his tent. Jono got out of his tent at 14:25 and ran back and forth in the church. Jono was directed back into the tent at 14:33. At 15:15 Jono got out of the tent to make his snack. Jono had a bowl of soup with one rice cake and one glass of water. We had to discard one rice cake as it had been in physical contact with raw meat. Jono concentrated well during learning, and did both worksheets and the number game. Jono then painted the pieces for the grotto art. Jono went back into his tent at 16:15. Lunch… Beef… mince… hotpot…pots… with… one… glass… of… water… Snack… bowl… of… soup… with… one… rice… cakes… and… one… glass… of… water…	Josie_Tuttiett
21	13/12/2024 04:41 PM	13th December 2024 Handover (Si orphan): Si mentioned how Jono went to bed early and slept through the night. Little Ilford: We arrived by little Ilford by 11:30. On the walk Jono appeared calm and attentive, especially while signalling to cross busy roads as well as referencing “Pharmacy” “delivery” “four seasons’ Chinese” and “Hopeful futures”. At the church the white noise machine was turned on and Jono put on Christmas songs. At 12:30 Jono began ordering his lunch, a takeaway from Deliveroo although Jono was focused on ripping up papers and took longer than usual just before having lunch by 1:05PM with a can of coke, he appeared hyper running round the room. For lunch Jono had a kebab, chips, a salad and a glass of water. After lunch Jono had his first art session of the day painting flour on canvass and painting a house attentively, he cleaned up the work are used afterwards as well. Although Jono had a running nose and needed to constantly blow. At 1:50 Jono began running around the centre, preparing for the 2nd art session by drying the art pieces painted earlier and then went into his tent at 2:40. At 2:50 Jono got out of his tent to make his snack. Jono had popcorn and soup. Jono concentrated well during learning and did both worksheets and Christmas pattern games. Jono then glued pieces for the 2nd art session and went back into his tent at 3:50. Jono poured out the hand washing liquid.	Michael_Solomon-Egwu
22	14/12/2024 03:38 PM	Wednesday 4th December Family Handover – Si: slept well – very loud and hyper when woke up, got up at 7 – bit earlier than usual. Staff Handover – Sophia: appeared relaxed happy, calm on walk to bus, bought lemon Fanta independently with cash at shop. Appeared calm on bus – watching out the window, smiling occasionally laughing only referencing occasionally. Continued to appear calm as we got off the bus and entered the Olympic park, appeared less interested in people around him than he usually is – less looking around and turning around, more looking forward and not stopping. Appeared a bit distracted when it came to ordering chips at kiosk in Food Hall – needed more prompts than usual to complete the order on the screen. Sat down at table upstairs started going on phone – needed prompting to get food out, did not seem very interested in eating, needed prompting to start eating and to drink water and lemonade. Eventually started eating, but kept needing encouragement to eat. Left ripping till end – ripped into fewer pieces than usual. Appeared calm on walk to bus – quiet, smiling, again less distracted by other people in the park – more concentrated on what was ahead. More hyper on journey back home – loud laughing and loud hyper noises and closing eyes tightly and rocking. We encouraged Jono to use his sensory toys, to rip the papers he had collected, to go on his phone and we tried to talk about the shops we were passing e.g., ‘Chinese takeaway, pharmacy’ but he continued to remain hyper for the whole journey. Jono appeared to become a bit quieter when we arrived home and put on ‘Moana’ and he was able to go on his iPad. For the last 30 min of the session Jono was quiet, watching ‘Moana’ and going on his iPad.	Sophia_Ramsay
23	14/12/2024 03:51 PM	10/12/24 Family handover: (Si) Jono did not gut up until 8 am. We left home at 10:50 am. Little Ilford: On the walk to the centre Jono referenced “newspaper”, “charity shop”, “pharmacy”, “coke cola”, “Christmas”. We arrived at the centre at 11:26 am. Jono took off his bag, coat and shoes and got into his tent. Jono got out of the tent at 12:25 pm and stated making his lunch. After lunch (13:20 pm) Jono stated his first art section, painting on the large canvas with sand and flour. At 13:30 pm Jono finished art and sat down and watch videos and listen to music and some ripping. At 15:00 pm Jono started his snack. Jono started learning at 15:15 pm and did worksheets “Birthday Social Story Literacy Exercise”, “Christmas Literacy Exercise” and a game “Teddy Numbers” and texted the WhatsApp group chat. After learning Jono did his second art session which was finishing of the Christmas cards.	Jonathan_Clinton
24	14/12/2024 06:43 PM	11th of December 2024 (Wednesday) Family handover (Si Orphan): Jono slept peacefully throughout the night without waking up once. He woke up around 7am and woke me up. Staff Handover (Isabella Leone-Holmes): Appeared calm and prepared upon arrival at his residence, having already finished packing his bag for the community session. Engaged in some brief conversation with staff before getting ready to leave. Appeared calm on the walk to the bus stop, closing all the gates on his road except for broken ones, which he bypassed when prompted by staff. At the shop, appeared focused as he selected a can of Fanta, pointing to it when asked by staff. Took the money from staff, handed it to the shopkeeper, and waited for staff to collect the change before leaving the shop. Appeared calm while boarding the bus, immediately checking the downstairs deck for newspapers. Found one in the designated box and carried it with him to the upper deck. Sat with staff and appeared engaged, referencing a few favourite topics (pharmacy, restaurant, Nando's) occasionally throughout the journey. Staff responded to his references, which seemed to keep him content. Continued to appear relaxed during the walk to Stratford Olympic Park, walking at a slow pace, making minimal noises, and referencing favourite items only occasionally. Appeared engaged upon entering the food hall but needed some assistance and additional prompts to navigate the self-service kiosk to order chips. Followed staff’s guidance to select options on the screen, completed the process, and waited patiently while staff paid. Once seated upstairs, needed prompting to take his pre-packed lunch (rice with vegetables and the can of Fanta purchased earlier) out of his bag and begin eating. Took his time eating, occasionally pausing to look around, but eventually finished both his lunch and chips without issue. Appeared calm during the walk back to the bus stop and seemed interested in taking the slightly longer route through the park at his request. Displayed focus and minimal distraction throughout the walk. Checked the downstairs deck for newspapers upon reaching the bus stop but did not find any. Remained calm as he moved to the upper deck to sit. During the return bus journey, appeared hyper, laughing loudly, making repetitive hyper noises, and rocking slightly while tightly closing his eyes. Staff encouraged him to engage with sensory toys, rip the newspaper he had collected earlier, and use his phone. Despite interventions, continued to remain hyper but occasionally referenced favorite items (pharmacy, restaurant) while looking out the window. Appeared calmer upon arriving home and was assisted by staff in selecting a movie on Disney+. Chose to watch Moana, showing interest as he settled down with staff to watch it. Appeared quiet and focused for the last 30 minutes of the session, alternating between watching the movie and using his iPad.	Isabella_Leone-Holmes
		Notes

wdt_ID	Date	Time of Meal	Meal Type	How much was eaten?	Meal Description	Support Worker
6
12	19/11/2024	01:00 PM	Snack	Less than half	Test Entry	jeremyacott
13	02/12/2024	01:03 PM	Lunch	All	Jacket potato with tuna and sweetcorn	Sophia_Ramsay
14	02/12/2024	02:30 PM	Snack	All	eat eat soup tomato cake rice x2 (recorded by Jono)	Sophia_Ramsay
15	04/12/2024	01:00 PM	Lunch	All	3 rice cake, chocolate browny, carrots, olives and chips.	Jonathan_Clinton
16	05/12/2024	12:36 PM	Lunch	All	(03/12/24) Mac and Cheese	Josie_Tuttiett
17	05/12/2024	02:30 PM	Snack	All	A bowl of soup with two rice cakes	Josie_Tuttiett
18	10/12/2024	01:00 PM	Lunch	All	Jacket Potato, Tuna, mayo, sweetcorn	Sophia_Ramsay
19	12/12/2024	12:36 PM	Lunch	All	Beef mince hotpot	Josie_Tuttiett
20	12/12/2024	03:15 PM	Snack	All	A bowl of soup and one rice cake (see daily notes)	Josie_Tuttiett
		Time of Meal	Meal Type	How much was eaten?	Meal Description

wdt_ID	wdt_last_edited_at	Time	Amount offered	Amount Drank	Drink Description	Support Worker
10	20/11/2024	11:00 AM	Other	Other	Test Entry - Please Ignore	jeremyacott
11	02/12/2024	01:03 PM	500ml	500ml	water (recorded by Jono)	Sophia_Ramsay
12	02/12/2024	02:30 PM	Other	Other	650ml drink water (recorded by Jono)	Sophia_Ramsay
13	04/12/2024	01:00 PM	250ml	250ml	Water bottle	Jonathan_Clinton
14	04/12/2024	01:00 PM	Other	Other	Fanta (330 ml)	Jonathan_Clinton
15	05/12/2024	12:35 PM	250ml	250ml	(03/12/24) One glass of water	Josie_Tuttiett
16	05/12/2024	12:36 PM	500ml	500ml	(03/12/24) One bottle of water	Josie_Tuttiett
17	05/12/2024	02:30 PM	250ml	250ml	(03/12/24) One glass of water	Josie_Tuttiett
18	12/12/2024	12:15 PM	250ml	250ml	Water- Glass of water and water bottle	Josie_Tuttiett
19	12/12/2024	03:15 PM	250ml	250ml	Glass of water	Josie_Tuttiett
		Time	Amount offered	Amount Drank	Drink Description

wdt_ID	Date	Time	Stool Type	Support Worker
11	20/11/2024	11:00 AM	Type 1 - Separate hard lumps indicating severe constipation	jeremyacott
12	05/12/2024	04:30 PM	Type 3 - Sausage-shape with cracks in the surface - normal	Josie_Tuttiett
13	13/12/2024	04:35 AM	Type 5 - Soft blobs with clear cut edges indicating a lack of fibre	Michael_Solomon-Egwu
14	14/12/2024	07:19 PM	Type 4 - Like a smooth soft sausage or snake - normal	Jonathan_Clinton
15	04/01/2025	07:05 PM	Type 4 - Like a smooth soft sausage or snake - normal	Sophia_Ramsay
16	06/01/2025	03:24 PM	Type 5 - Soft blobs with clear cut edges indicating a lack of fibre	Josie_Tuttiett
17	07/01/2025	04:17 PM	Type 5 - Soft blobs with clear cut edges indicating a lack of fibre	Michael_Solomon-Egwu
18	09/01/2025	04:21 PM	Type 4 - Like a smooth soft sausage or snake - normal	Jonathan_Clinton
19	11/01/2025	03:52 PM	Type 5 - Soft blobs with clear cut edges indicating a lack of fibre	Jonathan_Clinton
20	13/01/2025	04:32 PM	Type 4 - Like a smooth soft sausage or snake - normal	Jonathan_Clinton
		Time	Stool Type

wdt_ID	Date	Time	Description	Support Worker
8	16/11/2024	10:26 AM	Testing	jeremyacott
9	04/12/2024	11:50 AM	Partial help	Jonathan_Clinton
10	04/12/2024	01:40 PM	Partial help	Jonathan_Clinton
11	11/12/2024	12:07 PM	Partial help	Jonathan_Clinton
12	12/12/2024	03:20 PM	Jono went to the toilet, he was assisted with washing and drying his hands	Josie_Tuttiett
13	13/12/2024	01:20 PM	Partial assistance	Sophia_Ramsay
14	13/12/2024	02:45 PM	Partial assistance	Sophia_Ramsay
15	14/12/2024	07:15 PM	Partial help	Jonathan_Clinton
16	04/01/2025	05:55 PM	Encouragement and prompts to wash his hands	Sophia_Ramsay
17	04/01/2025	07:00 PM	Encouragement and prompts to wash hands	Sophia_Ramsay
		Time	Description

wdt_ID	Date	Time	Description	Support Worker
10	09/11/2024	02:28 PM	Test	jeremyacott
11	05/12/2024	04:35 PM	(03/12/24) Brushed his teeth for 2 minutes	Josie_Tuttiett
12	09/12/2024	04:35 PM	Brushed his teeth for 1 min	Jonathan_Clinton
13	13/12/2024	04:15 PM	Jono brushed his teeth (with prompts and encouragement) for 1 minute	Sophia_Ramsay
14	06/01/2025	04:20 PM	Jono brushed his teeth with assistance from a support worker for 1 minute	Josie_Tuttiett
15	07/01/2025	04:33 AM	Jono Brushed his Teeth by himself supported by a staff using the Hour glass Timer	Michael_Solomon-Egwu
16	09/01/2025	04:25 PM	Jono brushed his teeth for 1 minute with assistance of a support worker	Josie_Tuttiett
17	10/01/2025	04:15 PM	Encouragement and prompts for 1 minute to brush his teeth.	Sophia_Ramsay
18	13/01/2025	04:28 PM	Jono brushed his teeth with assistance from a support worker for 1 minute	Josie_Tuttiett
19	20/01/2025	04:07 PM	Supported to brush his teeth for one minute	Savithri_Balasubramanian
		Time	Description

wdt_ID	wdt_last_edited_at	Date of Incident	Time of Incident	Location of Incident	Witnesses	Slow triggers	Antecedent	Behaviour	Consequence	Timian Physical Skills	Details of any injuries	Support Worker
8	14/10/2024 01:54 PM	14/10/2024	02:53 PM	LIBC	Jeremy Acott	X	x	x	x	x	x	jeremyacott
10	14/12/2024 03:20 PM	30/11/2024	05:55 PM	Newham Leisure Centre	Jonathan, Isabella, Sophia	Discussions about Christmas, Birthday, etc.	We arrived at the leisure centre later than usual, reducing the amount of time Jono had to swim. Jono began swimming further away from staff and distancing himself, laughing loudly as he continued swimming across pools.	Jono swam to the far end of the main pool, away from the designated swimming lanes and staff supervision. When it was time to exit, he persisted in swimming into the other pool, which was not part of the "Disability Swimming Session." He displayed resistance to instructions by continuing to swim while laughing and actively avoiding redirection.	Staff used verbal prompts such as “Stop” and “Sit” to redirect Jono’s attention. Newspapers were also presented as a calming strategy, allowing Jono to rip them up for approximately one minute, which appeared to help him calm down. Following this, staff used the Timian one-person guide to safely escort Jono to the changing room.	One Person Guide	N/A	Isabella_Leone-Holmes
11	14/12/2024 06:51 PM	08/12/2024	05:45 PM	Little Ilford Baptist Church	Carys Orphan, Al Orphan, Si Orphan, Isabella	Loud noises at WAVE service due to new people joining.	At WAVE, many new people showed up, causing LIBC to be noisier and more crowded than usual. Jono noticed this change as he made multiple trips to the kitchen prior to the incident.	Jono headed to the kitchen several times. During one of these trips, he grabbed his sister Carys’ wrist, grinding his teeth and squeezing his eyes shut. Although his father, Si, was able to physically open Jono’s hand, Jono quickly grabbed Carys’ wrist again.	Jono’s mother, Al Orphan, verbally redirected him by asking him to sit on the floor near the kitchen area. She also requested a duvet blanket from the support worker, which allowed Jono to sit on the floor and calm down with the blanket on top of his legs and chest for approximately 10 minutes.	None	N/A	Isabella_Leone-Holmes
12	04/01/2025 10:54 PM	04/01/2025	07:20 PM	Little Ilford Baptist Church entrance gate	Sophia Ramsay Jonathan Clinton	Jono arrived back from France mid day yesterday and today was the first session back so he is adjusting to being back.	We did not have the key to the post box, but Jono would not leave without the post.	Jono was putting huge pressure on the post box - pulling at the door to open it to the point where we were worried he would break it. He was also closing his eyes tightly, closing his fists tightly and grinding his teeth.	We were eventually able to get the post out using kitchen tongs and Jono appeared to calm down and was happy to leave.	None	N/A	Sophia_Ramsay
13	04/01/2025 11:14 PM	04/01/2025	07:40 PM	Woodgrange Park Station	Sophia Ramsay Jonathan Clinton	We did not remind Jono to go to the toilet immediately before leaving LIBC. Jono's anxiety levels may have been higher because of adjusting to being back in London, the trouble with the post box and there being no newspapers.	Jono crossed over to Woodgrange Park station to check the newspaper stand, but there were no papers.	Jono urinated behind the bin at Woodgrange Park station.	Family informed	None	N/A	Sophia_Ramsay
14	10/01/2025 02:09 PM	10/01/2025	01:30 PM	At staff table at LIBC	Sophia Ramsay Jack Baynes	Carys's birthday the previous evening. It being Jack's first official shift.	Jono was cooking, then, in about 1 minute, went to his tent, then over to the staff laptops.	After a couple of seconds he jumped and went towards the kitchen accidentally going into Jack's laptop power cord - knocking the laptop onto the floor and pulling the plug out of the wall.	when we picked up the laptop it seemed fine, however, later on Jack noticed that the plug had come apart and could no longer be used.	None	N/A	Sophia_Ramsay
15	07/03/2025 01:36 PM	07/03/2025	11:25 AM	Crossing, on Romford Rd, next to LIBC	Michael Solomon-Egwu Sophia Ramsay	Due to staff illness and exams the rota for today changed quite a few times (including this morning) which may have confused Jono and caused some anxiety. Michael is not normally on shift on a Friday.	Jono needed some encouragement to cross from the island in the middle of the road and started walking slowly.	Jono froze in the road halfway between the island and the other side of the road. He was half-closing his eyes and smiling and not responding to staff encouragement, instruction or direction.	As Jono was not responding to either member of staff, the red man had appeared and cars were starting to move. I used a Timian one-person guide to support Jono to get to the other side of the road. When Jono got to the other side he smiled and made hyper happy noises.	One Person Guide	N/A	Sophia_Ramsay
16	14/03/2025 10:05 AM	13/03/2025	05:15 PM	Romford Road, on the corner of Katherine Road	Josie Tuttiett- Support Worker Michael Solomon- Egwu- Support Worker	We were walking towards Jono's house at the end of a Little Ilford session. Jono had urinated at Little Ilford Centre at 16:05 pm. He had urinated 4 times during the session.	Jono was carrying newspapers in his hands and indicated that he wanted me to hold them	As we were about to cross the road Jono handed his newspapers over to me and urinated in the street. We attempted to cover him as much as possible to preserve his privacy.	Jono publicly urinated. When he has finished we carried on walking home.	None	No injuries	Josie_Tuttiett
17	01/04/2025 05:51 PM	01/04/2025	05:25 PM	Romford Rd on the corner of Katherine Rd	Savithri Balasubramanian	Jono had his snack and water a lot later than usual, around 4pm.	As Jono was not urinating when he usually did, we prompted him more to use the toilet, but he would say no and then did not want to leave the tent. I encouraged Jono to use the toilet after his snack, but he did not want to go until just before we left	At the crossing on Romford Rd, at the corner of Katherine Rd, Jono indicated that he needed to urinate, Savithri and I tried to encourage Jono to wait till we got home as we were nearly there and he appeared to change his mind. However, there was still a red man and Jono changed his mind again. We persuaded Jono to wait again; but after a few seconds, Jono turned around to face the fence and urinated while I and Savithri stood either side of him to give him some privacy.	Family informed	None	N/A	Sophia_Ramsay
18	14/04/2025 04:29 PM	14/05/0025	05:18 PM	Romford Road	Savithri Balasubramanian	Jono drank Savithri's water bottle just before leaving the session.	Jono stopped at the lights on the corner of Katherine road, he handed me his newspapers	Jono handed me his newspaper and urinated in the street	Jono publicly urinated	None	No injuries	Josie_Tuttiett
		Date of Incident	Time of Incident	Location of Incident	Witnesses	Slow triggers	Antecedent	Behaviour	Consequence	Timian Physical Skills	Details of any injuries

wdt_ID	wdt_last_edited_at	Date	Time	Description	Support Worker
8	17/12/2024 07:47 PM	08/11/2024	02:29 PM	Test	Isabella_Leone-Holmes
9	23/01/2025 08:31 AM	22/01/2025	04:00 PM	JO Independent Living Meeting 22.01.25 4pm - 5pm Attended Nina Khatun - LBN Supported Living Commissioner Alice Amponsah - Hopeful Futures Managing Director Alison Orphan - JO's Mum Jason McCulloch - LBN Senior Commissioner LD & Autism Services Angie Ingleton - LBN Service Manager Learning Disabilities Family Update Alison’s Mum is very unwell. This is putting a huge strain and emotional toll on the family. It is very difficult for them all. Housing Update Discussions around housing possibilities. JO joining the housing register was ruled out about 1 year ago due to the waiting list being at least 10 years. Discussed possibility of private landlord, risks would be JO being evicted as per the landlords discretion. There is also a framework they would have to sign up to with the council which may make it difficult to find someone willing to do this. But it remains an option. Discussed purpose homes, Alice advised this was the preferred option from her perspective due to their track record and quick turn around. Wil Lewis completed due diligence before he left and seemed happy with them. Jason shared information about another possible scheme called HOLD which would involve a part buying scheme, this hasn't been looked into yet, Jason agreed to look into it. Nina advised there is no update regarding social care purchasing the property at the moment. Alice advised Hopeful Futures are now CQC registered so are ready to provide the care component when needed, this will need to be within 12 months. We all agreed a target move in date for JO is October 2025. Care costings Alice shared HF's new, increased care costings. Nina advised that a more detailed payment schedule will need to be completed. We discussed the rationale for the care hours, particularly the wake in and sleep in staff. Discussed the rationale was due to the likelihood of JO having increased anxiety and behaviours that include destruction to property and wanting to go outside to the bins. This would not be possible to manage with one member of staff. Discussed that this arrangement should be reviewed after 6 months as a wake in and sleep in is unlikely to be required indefinitely. We also discussed the day service component of JO's support which is included in the costing breakdown and covers the renting of the hall, bills, resources for the activities etc. We also discussed the need for a new MCA and to complete DoLS application in tandem when a property is identified, this will be completed by a social worker when allocated. We agreed to meet again on Thursday 13th March 3pm - 4pm Actions -Alice to share email contact from Purpose Homes with Jason, Jason to invite them to our next meeting in March -Jason to review business case previously completed by Wil and to look into the other unexplored housing option -Nina to share payment schedule, Alice to complete -Jason to send teams link for next meeting -Angie to allocate a social worker to JO	Alice_Amponsah
10	03/02/2025 01:29 PM	18/12/2024	09:30 PM	Wednesday 18th December 2024 Meeting with Sue Giles (Speech & Language Therapist) and Sophia Ramsay (Programme Lead for JO Programme) Sue shared that she was going to discharge Jono and would like to discuss what recommendations had worked and what had not worked. Sue also shared that if at any time we wanted to have any further help or input we just needed to get in touch with the health team. Recommendations that worked Expanding Jono’s vocabulary: Sue suggested that the learning activities should also try to expand Jono’s vocabulary, so we have been working on expanding Jono’s references and interests. For example, when Jono references Coke we sometimes also talk about Pepsi, Fanta or Sprite. Fanta, Pepsi, Sprite, Appletizer on community sessions Jono’s interests have always shaped the topics of the worksheets; as a way of expanding his vocabulary we have created worksheets with links to identified interests. For example, Jono likes the zoo and animal print paper so we created a worksheet on Zebras. Jono has demonstrated an increasing vocabulary through a variety of ways: - Regularly records lunch and snack and drink, often without much help and often attempting to figure out words before looking to staff for help. - Correctly and independently using these verbs: eat, cook, walk – using them in daily notes, worksheets, googling on his phone… - Often writing a word or most of a word (that the staff did not know he knew) independently. A current example is ‘dance’ Assessing Jono’s understanding of the written word: Sue suggested a variety of ways we could assess Jono’s comprehension. Labelling laminated photos of familiar stuff with laminated words: Jono has to correctly label items in places such as the LIBC kitchen or the garden at home. Jono appears to enjoy the interactive nature of labelling photographs and it has been a reliable way of assessing understanding of categories of words e.g., kitchen or vegetables and has been used as a basis for further worksheets. Change wording of worksheets – removing more words so that Jono has to spell them. The wording of the worksheets is regularly reviewed and changed to keep challenging Jono. Jono appears to respond positively to this challenge – demonstrating excellent focus and regularly trying to spell words independently before turning to staff for help. Ensure recipes are just written instructions - do not include any photos in the recipes. The recipes that Jono follows when cooking lunch at LIBC use words with no pictures - staff ask Jono ‘what do you have to do?’ and point at the instructions. Staff do not give prompts or directions until Jono has been given time to figure it out himself. Jono appears to respond positively to this – focusing well on the recipe and the cooking activities and often smiling and rocking while in the kitchen. Communication skills: Using What’s App to interact with family, family friends and staff Sue suggested putting more focus on communication with more of a communicative purpose. So, staff started encouraging Jono to use What’sApp every shift. Jono now regularly initiates contact with family members, staff members and family friends by sending messages. These messages are usually lists of objects Jono likes to reference e.g., takeaway, glue sticks, birthday… Jono also does not need prompting to check his messages, doing it by himself in the tent or at his table at LIBC or on the bus… Jono also responds to messages from other people, for example, he has regular message exchanges with staff members on a group chat. Emails Jono initiated use of email through demonstrating interest in Staff email and referencing names that he recognized; for example, Alice (staff member) or Carys (family member). Now Jono regularly initiates email exchanges with family members and staff members. For example, Jono has emailed Alice about having a takeaway together or having a party. Using his phone to communicate what he wants to talk about. Sue suggested encouraging Jono to use his phone to help him clearly communicate what he would like to talk about. Jono will now regularly use google to communicate to staff and family topics or objects he would like to discuss, for example, Chinese or craft. Jono has also independently discovered google maps, which he now uses as another way to communicate topics he would like to discuss. Staff ask Jono to type a word when he is struggling to get staff to understand what he is trying to communicate and often he is happy to do so. Developing relationships with others: Intensive Interaction – As a way of developing Jono’s communication Sue suggested introducing intensive interaction during sessions. Jono has responded positively to staff copying + responding to his vocalisations + hyper noises and actions such as rocking and dancing or running during LIBC sessions and in the community. Jono has appeared to seek further interaction with staff in response and appears to have become more affectionate with staff, for example, putting his hand on a staff members cheek or under a staff members chin. Jono now appears to seek more time with staff members – choosing to spend the time he would usually be in the tent sitting with staff. Jono also appears to have become more interested in people in general – when we are out in the community Jono demonstrates great interest in people walking by and those sat at other tables. This greater interest in people can be seen in Jono’s ability to communicate in more intense environments: Jono has developed his ability to manage and communicate in more intense environments. Every week he enjoys time at the Olympic Park Food Hall which is busy and loud. Jono has also done well making connections with people at the weekly church services and with contemporaries at Wave services. For example, sharing activity resources and doing activities at the same table. As a result of this development Jono has been able to go swimming for short periods of time and we are planning on going to the cinema (which Jono has requested). Recommendations that didn’t work Interactive stories – As a way to support and assess Jono’s ability to take in information and use it to make choices Sue suggested creating interactive stories about familiar topics e.g., going to Greenwich. This idea did not work though as after demonstrating the story and Jono going through it a few times he understood there were multiple options and wanted to do each version of the story every time we did the story. So, we were unable to assess r reliably engage with Jono’s ability to take in information and make choices. Taking in information – Another idea for assessing Jono’s ability to take in information was to add voice recordings on the laptop for when Jono makes lunch so Jono can get used to taking instructions straight from the laptop rather than the person standing next to him. However, Jono did not appear to respond to the instructions and appeared confused. The staff thought this might be too different a step, but that it might be an idea to come back to at a later date as Jono’s ability to take in information independently has been steadily developing; particularly in terms of cooking. Concept of time – Sue suggested creating a calendar with Jono with what he would do in a week – this will only include basic things and nothing that may be overwhelming such as a holiday – as Jono already does the date in the centre, this could help him understand the concept of time better. As this was an activity that would take time, and as Jono enjoys using his phone to google independently, he would appear to get distracted or bored and want to stop creating the calendar and go onto Google. The staff felt this could be an idea we could come back to as it could provide a sense of structure and security when Jono is feeling more anxious and overwhelmed. Mirroring words – To help Jono communicate his message and to develop his comprehension skills Sue suggested that staff write a word (the object or topic e.g. craft) on their phones when Jono references something to ensure they had understood correctly. When staff tried to put this into practice Jono appeared to get frustrated and would take their phone down and put it on a nearby surface or hold it while he referenced again. Staff wondered whether it felt to Jono that staff were not listening to him. Introducing connective words and prepositions – As a way of assessing Jono’s comprehension Sue suggested introducing changes to prompts/instructions of regular activities (such as making his snack) with words such as ‘with’ or ‘on’ or ‘under’. Staff attempted to introduce this exercise with various activities but Jono did not appear to understand. However, as Jono’s vocabulary continues to develop it is a method of assessment, I would like the staff to come back to. Recommendations that haven’t been taken up yet. Staff scrap book – To help Jono manage the fact that many of his support staff only stay for a couple of years at most Sue suggested putting together a physical or digital scrapbook of past and present support workers with their photos and names. Unfortunately, we have not managed to get round to this idea. However, it is a popular idea that we would like to put together. Jono reading instructions for craft activities – As part of assessing Jono’s comprehension skills Sue suggested introducing written instructions for a new craft activity – e.g. papercraft animal. We have not introduced this yet as we were introducing the written instructions to cooking session and we felt it would be too much change at once to introduce the change to an art session as well. However, Jono appears to have become comfortable working with the written instructions in the kitchen so the staff feel it is time to introduce the written instructions to the craft sessions. Changing small items and order of recipes - As part of assessing Jono’s comprehension skills Sue suggested regularly introducing small changes to the recipes that Jono is using, to ensure he is reading rather than remembering the recipe. As Jono appears to have become comfortable working with written instructions now would be a good time to introduce the challenge of regular changes to the recipes. Further discussion Shopping – We also discussed that as part of developing Jono’s life skills we would like to support Jono to start shopping for his meals at LIBC. Sue suggested the use of a visual shopping list and said that she would send us information about the idea. To aide communication Sue also suggested a communication app called Speech Assistant. It is an app to help people express themselves and can be customised. Further actions • Sue stated that she would follow up with the dental team at the Royal London Hospital for appointments for Jono. • Sue stated that she would send a letter to Al and Si to say that Jono had been discharged. • Sue stated that she would complete a Communication profile for Jono and send it to Al and Si and the programme. Sophia Ramsay Programme Lead Wed 18th December 2024	Sophia_Ramsay
11	09/04/2025 12:05 PM	26/03/2025	09:40 AM	JO Independent Living Meeting 26.03.25 9am - 10am Attended Nina Khatun - LBN Supported Living Commissioner Alice Amponsah - Hopeful Futures Managing Director Alison Orphan - JO's Mum Jason McCulloch - LBN Senior Commissioner LD & Autism Services Philip Warr - Purpose Homes (for the first part of the meeting to share about Purpose Homes & then they left the meeting) Michelle Sigauke - Purpose Homes (for the first part of the meeting to share about Purpose Homes & then they left the meeting) Apologies Angie Ingleton - LBN Service Manager Learning Disabilities Karl Henson - LBN Assisted Director Sam Faulding - LBN Capital Acquisitions Previous Minutes & Actions Alice went through the previous minutes and actions from 22.01.25, still outstanding: -Angie to allocate a social worker to JO - we agreed Jason would follow this up Purpose Homes Offer Philip and Michelle provided an overview of Purpose Homes and what they would be able to offer. They advised that Purpose Homes is a provider of property for people with learning disabilities, autism and complex needs. They work to understand people's needs and to then provide long term, suitable housing where people stay for life because they want to and because the environment is built around them. They find an appropriate house/building and then adapt this to the person's needs. They complete an in-depth environmental assessment for the person to make sure that their environmental needs will be met. They work with housing associations who then manage the property, the tenancy and the environment of the property. They tend to work with the housing association called Inclusion. DWP pay for the rent. If the property becomes empty for whatever reason, there is a 3 month grace period where the rent is covered, following this it becomes the commissioners responsibility to pay, Philip and Michelle advised that this is low risk in their experience due to 1. No one they've housed ever deciding to move out and 2. If for whatever reason the property was vacated there being such a high demand for bespoke services such as this that someone else would be placed there easily within the 3 month grace period. Jason asked about the nominations and void agreement, purpose homes advised this would be 20 years to go alongside the lease. Jason also asked about upfront funding costs. Purpose homes advised that the property and all required adaptations are 100% funded (usually by acquired pension funds or similar) and there are no upfront or capital costs required from the local authority. If the commissioning authority pulled out for whatever reason they would then need to pay for the legal/building fees done which is usually around £7,000 - this covers the external costs to purpose homes but none of the internal costs to purpose homes. Jason asked if there were any economies of scale e.g a block of accommodation rather than a single property. Purpose homes advised that they have developed this type of service and gave an example of Southampton whereby they developed a block of 12 flats, the rent was in the region of early £300s, for a single bungalow it was in £500s and for single services was around £800s. Purpose Homes advised we would need to add at least 20% to rent costs for Newham. Alison asked about whether Purpose Homes provide environmental adaptations for noise given that JO can be noisy. Purpose Homes advised that they do and that this is within the environmental assessment completed at the beginning of the process. At this point of the meeting, Philip and Michelle from Purpose Homes left the meeting so that the group could discuss the other housing options. Other Options Jason provided an overview of the other current options for JO's housing: 1. Newham council purchasing a property - there is an amount of capital available to do this but the amount and details are not clear yet - Jason is meeting with Sam next week to explore further and to consider what would be practical for the council to do 2. Sourcing an existing council owned or housing association property - these are only 1 bed flats which would not be suitable for JO as he requires a 2 bed property due to need for 24 hour staff but Jason is enquiring as to whether a 2 bed property could be secured as he advised this would be a cost effective way of accessing a property 3. Home ownership for people with long term disabilities through HOLD - not sure if these are in Newham - Jason will find out about this next week 4. Golden Lane Housing who are associated with Royal Mencap may be able to provide a similar offer to Purpose Homes, Jason is going to explore this. Alice advised that when she looked into Golden Lane Housing it seemed as though a property would need to be in place and they would then manage the tenancy - Jason will find out about if they can also offer a property or not We had a discussion about the time pressures as we have been working on supporting Jono into independent living for a long time now and we all acknowledged our target move in date of October 2025. Alison provided further context; that the family situation continues to be unsustainable due to Simon (Jono's Dad) having been impacted by strokes and in need of support himself due to this as well as Alison's Mother being very unwell needing Alison's time and support. Alice advised there is no contingency plan in place should home life breakdown due to continued strain of caring responsibilities on the family. Jason agreed that he can develop the business case within the next 6 weeks and that it will be completed by our next meeting on 8th May 2025. Supported Living Budget Nina advised that we may need to split the costings of the day provision component of the overall budget for Jono's support. Alice advised difficulties with this due to the proposed supported living provision being across 24 hours, the support not being separate and it being a completely bespoke service to JO. Nina advised she will find out if we need to split the costing proposal or if we can keep it as one proposal. We arranged our next meeting for Thursday 8th May 2pm - 3pm. Actions -Jason to complete the business case by our next meeting on 8th May 2025 -Jason to find out if JO has been allocated a social worker -Nina to find out if Hopeful Futures needs to split the costing proposal and to then check with social care that the proposed hours are correct and right for Jono's assessed needs	Alice_Amponsah
12	19/05/2025 11:47 AM	06/05/2025	09:00 PM	JO Annual Health Check at Claremont Clinic, Romford Rd, London, E78AB 06/05/25 9am – 9:20am Present • Jono Orphan • Dr Joyce • Simon Orphan • Sophia Ramsay Jono appeared calm on the walk to the clinic – humming and people watching – and continued to appear relaxed sitting in the waiting room – people watching and smiling. Jono appeared happy to see Dr Joyce and appeared relaxed in the consultation room – looking round the room, smiling occasionally and being affectionate towards Sophia. Dr Joyce asked Simon how Jono was doing generally and Simon reported that Jono has been very happy and that he is hardly ever ill, although he has caught Simon’s cold so his eyes and nose are running a lot at the moment. Medication Review Eczema Simon confirmed that Jono often uses 1% Hydrocortisone cream – both independently and prompted by family and staff. Simon also confirmed that Jono has the 2% Hydrocortisone cream that he uses (both independently and prompted by family and staff) when the eczema gets a bit worse. Simon also added that Jono has a stronger Hydrocortisone cream for when the eczema becomes infected – and Simon confirmed that it is effective. Simon confirmed that Jono uses the Zerolatum bath oil every night and a specialist shampoo every week. Sophia shared with Dr Joyce that Jono regularly washes his eczema under running water during his programme sessions. Dr Joyce explained that this will dry the areas out so he prescribed a general moisturizer. Dr Joyce explained to Sophia that Jono’s Eczema has hugely improved in the time that he has known Jono. Bowels Simon confirmed that Jono has 1 sachet of Laxido every morning with gravy and 1 Desmo Melt every night with 2 wine gums; and that this is working effectively. Weight Dr Joyce weighed Jono and confirmed that he has stayed the same weight as the past couple of years. Simon and Dr Joyce shared that it is usually very difficult to convince Jono to stand on the scales, however, this time Jono got on straight away and was happy to stay on until Dr Joyce had read the scales. Dr Joyce observed that Jono is looking fitter and more toned and Simon and Sophia shared that Jono is doing a lot of walking every day and has started swimming. Concerns around urination Sophia reported that Jono’s support staff have raised concerns around how often Jono urinates during sessions and that he had one close call where he only just managed to get to the toilet on time. Sophia requested a urinalysis and Dr Joyce was happy to provide the test. Simon reported that they have no concerns around Jono’s urination at home during the day or night. Dr Joyce explained that he is expecting the results to be normal but that it will be good to be safe and check. Sophia accessing Jono’s health records Sophia explained that, to support Alison and Simon, it would be helpful for her, as the manager of Jono’s staff team, to have access to his health records. Dr Joyce explained that this would not be a problem, and that he would send Alison a message asking Simon and Alison to simply confirm via text message that they are happy for Sophia to have access to Jono’s health records. Dr Joyce explained Jono’s records only have Alison’s phone number as a contact, but it is possible to add any email addresses if they want and that they could add Sophia’s email address if they like.	Sophia_Ramsay
13	19/05/2025 08:00 PM	15/05/2025	11:00 AM	Review with Alison and Simon Orphan 15th May 2025 11 – 12:30pm Present Alison Orphan Simon Orphan Sophia Ramsay CQC and Respite Hours Alison explained that, as Hopeful Futures now has CQC registration, Jono’s programme needs to be doing personal care by the end of January 2026 otherwise Hopeful Futures will lose their registration and have to pay a lot of money to re-register. Now they have a definite timeline Alison and Simon explained that they are committed to getting the respite hours up and running and would like to start doing respite care at some point after coming back from France. Alison explained that they would like the respite hours to start as they mean to go on, and so they would like to make sure Carys is out of the house from Day 1. Sophia to offer Carys her flat as a place she could go to for the duration of the shift. Simon reminded Alison and Sophia that staff will need to have a key to get into the house – Sophia shared that she has a spare key and that staff can use that one. Sophia, Alison and Simon agreed that it would be good for the respite hours to start on a Friday – given that there are more potential places and events for Alison and Simon to go out to. Sophia, Alison and Simon also agreed that it would be good to increase the respite shifts by 1 hour each time – as we did previously with the respite hours. By ensuring the shifts increase slowly we will be able to iron out problems as they come up. Alison and Simon highlighted the fact that staff will need to have medication training to be able to provide Paracetamol if needed and, in the future, to be able to give Jono the Desmo Melt and Laxido. Alison acknowledged the expense and time involved in organising the training has meant it has previously been put on the back burner; however, she explained that Zainab will be taking over some of the training from Alice. Therefore, she may be able to do the medication training for Jono’s staff team – Alison added that Zainab knew Jono when she was a TA and really liked him. Alison stated that by September she and Simon would like the family out of house all day Saturday and Saturday evening. Simon wondered whether Jono’s staff team would have to take more staff on board to make this work. Sophia shared that Jono’s staff team are keen to get started on the respite hours as they are keen to be able to support Alison and Simon to be able to go away for the night. Actions - Sophia will email Alice about organising medication training for Jono’s staff team before the respite hours start. - Sophia will talk through the plan for the respite hours with Alice to identify what the respite hours should look like and whether there are any details that have not been thought through. - Sophia to talk to Carys about what she wants staff to do when Jono goes into her room. - Sophia to come back to Alison and Simon to check what they want staff to do when Jono goes into their room. Annual health check Simon reflected that the annual health check went well, in particular Jono getting on the scales. Simon shared that it has previously been very tricky to persuade Jono to put two feet on the scales at the same time, however this time Jono got on with no issue. Sophia shared her concern that Dr Joyce did not check Jono’s blood pressure; Alison explained that, as they have introduced the machine in the entrance to the surgery, the GPs no longer check blood pressure. Therefore, staff will have to support Jono to check his blood pressure using the machine in the surgery. Sophia, Alison and Simon discussed the fact that the process of getting a urine sample will be difficult and may take a few attempts. Sophia, Simon and Alison agreed that Sophia will attempt to get a urine sample on Monday 19th May before the LIBC session. Alison shared that she has confirmed Dr Joyce’s request for Sophia to have access to Jono’s health records. Actions - Sophia and staff to develop plan to support Jono to check his blood pressure using the machine at Claremont Clinic. - Sophia to get a urine sample from Jono on Monday 19th May before the LIBC session. Jono’s meals at LIBC Simon explained that he does a big food shop every 2 weeks at the start of the week. So any new recipes need to be emailed to Alison and Simon on Thursdays, or when they are away on holiday e.g., France. Actions - Sophia to send the new recipes for June and July to Alison and Simon by the 30th of May. Handover Alison shared a concern that, due to Simon’s aphasia, staff were not getting a full picture of how Jono is doing during handover; for example, whether or not Jono is anxious. Alison suggested that staff could identify what information they need to know and create specific questions to ask during handover. Actions - Sophia and Jono’s staff team to identify what information they need to know and create specific questions to ask for handover. Art Hub Alison reminded Sophia that Jono is one of the 14 artists who will be working in a studio in partnership with Rosetta Arts as part of Art Hub; and this will start in September. Alison suggested that it would be a good idea to start working on a plan and a risk assessment now. Actions - Sophia to make contact with Tolu to start working on a support plan and risk assessment for Jono going to the group in September. Groovy Cat club Alison shared that Carys would like Jono to eventually go to one of their club nights. Actions - Sophia to discuss the idea of supporting Jono to go to one of their club nights with Alice and Jono’s staff team. Wave Connect Alison shared that the members of Wave Connect would like Si and Jono to join them. Actions - Sophia to discuss with Alice, Alison and Simon a potential plan for a starting date. Liverpool Alison and Simon shared that they will be going to Liverpool for Alison’s mother’s 90th birthday from 23rd to 26th June.	Sophia_Ramsay
14	28/05/2025 11:01 AM	08/05/2025	03:00 PM	JO Housing Meeting Attended Alice Amponsah - Hopeful Futures Managing Director Alison Orphan - Mother Jason McCulloch - LBN Senior Commissioner LD & Autism Services Nina Khatun - LBN Supported Living Commissioner Angie Ingleton - LBN Service Manager Learning Disabilities Apologies: Wemimo Fagbadegun - Jono's Social Worker Previous Minutes & Actions Arising: Jono now has a social worker who couldn't attend today but will hopefully be at our next meeting Nina to determine if costings need to be split between day provision / 24hour provision. Discussion was had regarding Jono doing activities in his own new home rather than going to LIBC for activities - Alice, Alison and Angie advised this would not work for Jono - he would need consistency in his routine as well as having a purpose & structure to his day which LIBC provides for him. The group also acknowledged that Hopeful Futures would be charging a very small rate compared to most day services. Jason had completed the business case for today's meeting. Business Case Jason ran through the business case. All agreed that existing supported living services won't meet Jono's needs. Angie advised there is another individual in the borough who has their care split between two providers which LBN would want to explore for Jono. Alison stated she wouldn't be happy with this and would want Hopeful Futures to provide 24/hour support. Alice raised concerns about continuity in care and support. Despite concerns raised, Angie advised that this is working well for another local individual with complex needs. Alison shared that the business case does not really reflect Jono and his history, the background to the support Hopeful Futures have been providing and how this has helped him to become who he is today. After much discussion on the business case, all agreed the only two viable options appear to be Purpose Homes or a similar organisation or LBN purchasing a property. Angie advised that from her knowledge LBN's budget would only be able to buy a bedsit which would not be suitable for Jono as he needs a two bed property due to 24 hour staff requirement. Funding Jono's support: We had a discussion around the costings which LBN stated are high, Alice advised the proposed costings are within market range for individuals with complex needs needing 2:1 24/hour support a day. Angie advised the costings should be compared with out of area placements. Angie also advised for Hopeful Futures to undertake the care cube exercise. We also had a discussion regarding CHC funding as Jono is currently only funded by LBN. All agreed it would be good for Jono to have a CHC checklist completed. Actions from today's meeting: -Alice to provide some evidence of Jono's behaviours that challenge history and the support Hopeful Futures has provided which has improved Jono's quality of life & significantly reduced behaviours of distress -Jason to bolster the business case with information about Hopeful Futures support and Jono's history (info from Alice can be used) -Jason to confirm how much the council would have to spend on a property -Angie to ask Lesley at LBN to undertake the care cube exercise with Alice -Angie to ask Jono's social worker to complete the CHC checklist We arranged the next meeting for Tuesday 3rd June at 4pm	Alice_Amponsah
15	16/06/2025 11:12 PM	03/06/2025	04:00 PM	JO Independent Living Meeting Minutes 03.06.2025 Attended Alison Orphan – Mother Simon Orphan – Father Alice Amponsah – Managing Director Hopeful Futures Wemimo Fagbadegun – Jono’s Social Worker Jason McCulloch - LBN Senior Commissioner LD & Autism Services Apologies Nina Khatun - LBN Supported Living Commissioner Angie Ingleton - LBN Service Manager Learning Disabilities Outstanding actions from previous meeting • Jason to ask Angie about the service design of another person in the Borough • Alice sent supporting evidence regarding Jono’s needs & Jason to use this to strengthen the business case • Wemimo to complete CHC checklist – this is happening next week • Alice & Lesley to complete the care cube exercise – this is happening next week • Jason to confirm how much the council would have to spend on a property purchase The team had a discussion around the fact that LBN are not in a position to make a decision on the recommendation because there are still outstanding actions. Alice, Alison and Simon raised dissatisfaction with lack of progress from the previous meeting, we agreed that the outstanding actions will be completed before a final recommendation can be made to go forward at our next meeting on 20th June, to then be taken to the panel at the end of the month. The group’s feeling at this moment in time is that Purpose Homes will be the recommendation. Alice raised the importance of making sure that this decision-making process is a best interests process, as in line with the Mental Capacity Act 2005, due to concerns about the process being referred to as a business case thus far. As well as the outstanding actions above, Jason noted the following will need to be in place before a recommendation can be made: • Wemimo to complete her report Alison also advised she will provide a family report, to evidence the family’s position on what they believe is best for their son. We agreed to meet again on Friday 20th June at 3pm via Microsoft Teams.	Sophia_Ramsay
16	16/06/2025 11:14 PM	10/06/2025	01:15 AM	Social Worker visit to meet Jono at Little Ilford Baptist Church 10th June 2025 Present Jono Orphan Josie Tuttiett Sophia Ramsay Wemimo Fagbadegun (Jono’s Social Worker) Wemimo arrived and introduced herself to Jono, although Jono appeared overwhelmed (closing his eyes) he was smiling broadly and making soft happy noises. When Wemimo offered her hand to shake Jono reached out with his hand to touch hers. Wemimo arrived while Jono was finishing his lunch, so was able to observe him washing up, painting, being supported with personal care, using his tent and ripping as sensory regulation and making his snack. During which Wemimo explained that she was here to do a new assessment, due to the change in Jono’s home circumstances; and she, Josie and Sophia discussed Jono’s support needs. Josie and Sophia shared that Jono communicates in a variety of ways that include physical gestures, vocalisations, referencing and typing on his phone, laptop, iPad; staff are also introducing Makaton into Jono’s sessions. Josie and Sophia explained that Jono particularly enjoys typing so his programme has been supporting him to develop written vocabulary. Wemimo asked about Jono’s friends and Josie and Sophia shared that Jono has been developing relationships with his peers through attending WAVE once a month, and has been developing relationships with members of the church he attends every week. Josie and Sophia explained that, although Jono can struggle with crowds and noise, he is a very outgoing person who can really enjoy a party; so, his support staff are looking to support him to access new groups. Josie and Sophia explained that Jono has no sense of danger; so, at LIBC he needs to be closely supervised in the kitchen. When in the community, staff must support Jono to stay safe around roads, stay safe in his interactions with the public, and stay safe while dealing with crowds and loud noises and his fears such as small children and dogs. Josie and Sophia shared that Jono needs supervision and prompting with personal care from staff in the community and at LIBC, but staff provide no direct physical support; while at home Jono’s family supports him with all his personal care needs. Wemimo explained that she is legally required to do a Mental Capacity Assessment for Jono’s new support needs assessment and that she will need to do it while his parents are present so they can support Jono during the assessment. She explained that she will be in touch with Alison and Simon Orphan to arrange a date; and she will also be in touch with Alison to re-arrange the meeting to discuss Jono’s support needs. Josie and Sophia showed Wemimo the photos of Jono on Support Hub doing activities such as going to the cinema, cooking e.t.c.; Wemimo was impressed with the photos and asked if a few could be sent to her to go towards her assessment. Along with the photos Wemimo asked to be sent Jono’s weekly timetable and his care plans and risk assessments. Actions Wemimo to meet with Alison to discuss Jono’s support needs Wemimo to complete Jono’s Mental Capacity Assessment Sophia to send Wemimo the photos of Jono, care plans and risk assessments.	Sophia_Ramsay
17	15/07/2025 06:13 PM	14/07/2025	11:15 PM	July Programme Review Monday 14th July 11:15 to 12:15 Present • Simon Orphan • Alison Orphan • Sophia Ramsay Jono’s well-being Alison and Simon explained that they feel the last month was decimated by their trip to Liverpool for Alison’s Mum’s 90th birthday, particularly as the trip was not long after they had come back from France. After the travelling, and then the party itself, Alison explained that she, Simon and Carys were exhausted and that the driving was particularly tiring for Simon. Alison added that she does not think that they or Jono have recovered from it, and that their exhaustion and worry about Alison’s mum have increased Jono’s anxiety. Alison and Simon feel that Jono has been discombobulated by all the activities of the last month. Generally, Alison and Simon agreed that Jono has been more anxious than he has been for a while. They shared that last night Jono was going in and out of kitchen, desperately looking for things to rip; Sophia added that Jono has also been doing a lot of shallow, fast breathing while walking to and from LIBC. Alison, Simon and Sophia agreed that due to Jono’s heightened anxiety it would be best not to go to the fun fair at the end of July. Alison and Simon explained that Alison’s mum is receiving end of life care for two conditions; and the family anxiety about Alison’s mum’s health overshadows everything and the longer it goes on, the more effect it has on everyone Actions • When Jono comes back from a trip away there will be a break of at least 3 days before he goes swimming. • Staff will avoid introducing any changes in the week and the week after Jono returns from a break. Future programme reviews Alison and Simon confirmed that they want to continue with the programme reviews in September. GP Sophia confirmed that Alison and Simon knew that she can now access any of Jono’s test results. Sophia also confirmed that Jono’s GP contact details have been updated with Alison and Simon’s email addresses. Alison explained that she and Simon will sort out permission for Sophia to access Jono’s patient profile from the GP for his Support Plan. Alison and Simon explained that before they go away to France, they will have to pick up prescriptions, so will be able to pick up Jono’s moisturiser that was prescribed at his Annual Health check. Dentist Alison explained that when they cancelled the Faversham appointment the dental service said that they would be in contact with another appointment. However, they have not been in touch, so Alison will chase them up. WAVE Connect Alison, Simon and Sophia agreed that, as Jono will be starting Art Hub in September, it would be best to postpone Jono attending until he has got used to Art Hub.	Sophia_Ramsay
		Date	Time	Description

wdt_ID	Date	Photographs	Description	Support Worker
5	20/11/2024		Just Testing!	jeremyacott
6	20/12/2024		Jono at WAVE (8/12/24)	Isabella_Leone-Holmes
7	20/12/2024		Jono's art activity at WAVE (8/12/24)	Isabella_Leone-Holmes
8	20/12/2024		Jono at WAVE 2 (8/12/24)	Isabella_Leone-Holmes
9	06/01/2025		First art painting with flour and sand	Josie_Tuttiett
10	06/01/2025		Tissue paper flower card	Josie_Tuttiett
11	07/01/2025		Jono cooking Sweet potato, chickpea and spinach curry	Sophia_Ramsay
12	07/01/2025		Jono cooking sweet potato, chickpea and spinach curry	Sophia_Ramsay
13	10/01/2025		Jono painting	Sophia_Ramsay
14	10/01/2025		Jono painting	Sophia_Ramsay

Care Plan	DOWNLOAD	01/01/2025
Risk Assessment	DOWNLOAD	01/01/2025
Health Action Plan	DOWNLOAD	01/01/2025
Additional Document 1	DOWNLOAD	N/A
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Additional Document 3	DOWNLOAD	N/A